Decisions, Decisions, Decisions

This week has been interesting. I've had my port for about a week and it is finally starting to feel a little better. It still feels weird and limits my range of motion a little, but it is getting better. I really had a hard time looking at my port in the beginning. It is kind of the first physical sign that I have cancer and there is no turning back. I guess, for me at least, I deny that anything is actually wrong with me until I physically see it.  The port is the first thing that I really looked at and felt disgusted. I would love to say I am being a champ about this whole thing and nothing was going to get me down, but that would just not be the truth. I've had some breakdowns and moments I ask God "why me"? "What did I do wrong?"... This straight up sucks.  I wish none of this ever got me down but that just is not realistic.

I start my IVF this week to save my eggs since chemo may make me infertile. Luckily, my contact, Lizzie, at the fertility doctor's office has been amazing. Apparently, I am the first oncology patient that has been referred to their practice, which I honestly think it a good thing. Lizzie is an angel. She helped me find this program through LIVESTRONG to pay for the medications to get through IVF. These drugs are very expensive, so keep your finger crossed that I will be getting a call LIVESTRONG confirming I got the drugs. I really hope this all works out.

Silver lining of the week is I received a care package from my sister's best friends lil Jessi and Felts.  It was amazing.  I also got a visit from Misty, KL, and Rachel with another chemo care package. I honestly cannot believe how blessed I am with the people in my life. It is not only the care packages, but the amazing cards, texts, mental advise, support, and beyond. I could go on forever for the wonderful loving outpour from friends and family. It may be crappy that I have cancer, but the love that surrounds me is amazing.

Baby?

I think one of the hardest things while preparing for treatment has been going to the fertility doctor. So maybe I am behind everyone, but I had not given children a huge thought. I mean I figured I would have them one day, but I was shooting for early to mid 30's before.  When someone tells you, hey chemo has a 50% chance of making you infertile. Oh and BTW if you want to freeze your eggs to help ensure a better chance of having a child, it is going to cost you a butt load on top of all the medical bills you already have. The cherry on top is if you ever want to use them you have to pay every year to keep them frozen and then another nice chunk to get them fertilized and back inside you. 

The other option to help increase my chances of being fertile is to take a shot call depo lupron.  This would basically send me into basic menopause during chemo to help protect my eggs.  Research has shown this shot could increase my chance by 20% to have children. Sounds good right. Well my MD did not sound so sure.

This has been one of the most emotional decisions for me. So what do you do? Do you take out a loan and freeze your eggs? Do you take your chances and do the shot? Can you do both options?

After a lot of back and forth, I decided to freeze my eggs. I mean I would be kicking myself down the road if I do end up infertile and I did not try everything possible to have my own child. I think the two people who really helped me decide to freeze my eggs was my Aunt Karyn and Uncle Jerry. This is my dad's twin brother and his wife, which I would consider them my second parents. They have always spoiled my sister and I to death. They are seriously the sweetest and most loving people I have ever met. I know I have to say they have not been dealt the best hand, but you would never know it by speaking to them. I was talking to them the other day and they told me if they would have had the chance to freeze eggs the definitely would have. My aunt is a very brittle type one diabetic (she wasn't diagnosed with diabetes until she had a back surgery in her 30's which started the DM).  My aunt and uncle never had human children and I say this because they have babies in the shape of dogs and cats. I wish I could do more than just verbally thank them.

So, now it is a waiting game to get everything set up to freeze my eggs and hopefully get chemo scheduled ASAP after. I wish I had an EASY button.

My puppy Knox!!! Kind of like a baby!

Hi U have cancer.

So I am writing a blog to help me sort out my thoughts and to vent.  At 28 years old you think about looking for the right guy, what is the latest fashion, I should exercise more, I love my job or hate my job, I love hanging out with my friends….. One thing you definitely do not think about is oh shit I have cancer.

It was a Friday night.  Rob and I went out to eat. It was the first really chilly night of fall, so I wore a scarf. I was fixing my scarf while waiting for dinner and there it was.... A lump right where my neck meets my body on the right side. I made Rob feel it and just brushed it off, thinking huh that is weird.

When I got to work on Monday, Juliann joked with me about my lump and we named it Wilson. All my friends at work said that I should get my lump checked out.  So, I went to Dr. Gallus that Thursday and by the next week I got a CT scan. 

One of my best friends Amanda came with me to my follow up appointment with my doctor. I figured I was just going to be handed some antibiotics and say see you later, but I got the exact opposite. I was told my CT scan did not look good and the primary suspicion was lymphoma.  The only way to find out for sure was a to have a biopsy of the lump. Prior to getting the biopsy scheduled, I also had a PET scan.  It would take a little over a week to finally get into surgery for my biopsy.  Dr. Domet biopsied my lymph node on the right side of my neck.  Afterwards, he came out and told me he was not a pathologist, but to him it looked like lymphoma. The next 2 days were just a waiting game... 

The moment you actually find out for sure you have cancer is not as upsetting as one might think. It is more like a calm before the storm. The day I found out started out like any other day. Woke up and went to work. I was looking through my chart online to see if my PET scan came back. It was not posted to my chart, but my pathology report was up from my biopsy. There it was in big bold letters CLASSIC HODGKIN'S LYMPHOMA. I went and got two of the nurses I work with, Juliann and Catherine, to make sure I was not dreaming. When people hug you and say I'm sorry after just reading your report, you know it is not good. I went home right away because my amazing sis and mother came to be with me. I did not even get a call from a doctor until later that afternoon.  Not the way I wanted to learn I had cancer.

The picture below, I like to think, is classic me. I HATE IVs, I HATE needles, and this was just a really crappy moment.  I am still trying to make light of the situation. This is my bone marrow biopsy day. This procedure by far was one of the worst days. I highly recommend if you are ever asked to do this, make sure you are put under. They biopsy your bone marrow from your hip bone and I was lucky enough to get it done to both of my hip bones :). 

I want to end this post saying thank you to my wonderful loving family. We may not be big, but I would not change you for the world!!!! Shelly you are the best sister I could ever ask for… you are my rock. Thanks to my amazing boyfriend, Rob, who would do anything for me to make my life better. Thanks to my outstanding friends. Finally thank you to everyone who has texted, emailed, Facebooked, sent me flowers, cards, and calls. They all really mean so much to me.